An Email from Tim LaFollette (OftenAwesome.org)

Hello Army....I still love saying that. It's almost been a year now since my diagnosis and I'm still as happy and optimistic as I was then. Why? Because of all of you. From the benefit shows to the donations on the website....from the surprise trips to plays and support from my favorite rollergirls...from all the new and wonderful people i've met and community we've built. All of this and more still makes me cling to life more fiercely than I ever had before. This is no longer a support network but a full fledged movement. We are going to change the course of this disease, of that I have no doubt.

Thanks to all who have been supporting the series as well. The more plays we get, the better chance we can get the word out and really make a difference.

Physically, things are much more challenging. Typing this on my left hand is a royal pain....weakness is setting on all limbs, but my breathing and speaking is holding steady, which is fantastic. Got my new chair and am preparing to pimp it out.

And lastly, we are headed to Scotland tuesday to finally take our honeymoon. Go to cameronhouse.co.uk and prepare to get jealous. Due to the connections of my friends Gareth and Catherine, we are staying there for free.

Sooooo, typing is getting harder (anyone have a bootleg of MacSpeak Dictate?). But I love talking to all of you. My skype name is Smuchit and my phone is 336-xxx-xxxx.

I love you guys. Thanks for keeping me (figuratively) on my feet.

Tim

Thanks to everyone for his charity being chosen for our last bout, he was still walking and in pretty good shape when I did the charity walk with him and Chick and Pinky a few months back, the disease is devastating and is quickly taking it's toll on him. But I wanted you guys to see the lovely shout out to us he included in this message, he is a huge fan of the team, and he is truly a remarkable person that is slowly being taken away by ALS, which is such a terrible disease.

I encourage anyone that can to become a member of the often awesome army, donate some money to the cause if you can, send him some love, and I hope we can maybe bout again for this cause in the future!

Much love mwaahhhh! *Impress Intoya*

Often Awesome website

Watch Often Awesome: The Series

Learn more about "Lou Gehrig's Disease" at the ALS Association

Comments

[jennalee]

i will sure want to become a member of your army. Very heart touching post. Thanks for sharing it.
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